- I'm really tired a lot (duh)
- am having indigestion
- have lost some sense of taste (like sweets, grr)
- I've been tired some more
- water tastes really weird (not as crisp)
- the ends of my teeth are numb (chemo affects your gums)
- coughing, shortness of breath, sore throat
- irritable :)
So anyway, yesterday was my last day of chemo (round 1), and I should start to feel better in a few days. The next round will start in about 3 weeks and should last 5 days, and then we'll be doing chemo treatments once a month until the transplant happens. Btw, for those technically interested, there is a thing called a Nadir Point for Azacytadine which means that my blood counts will hit their lowest point about 10-17 days after the start of the chemo, then should increase by the 28th day. However, I *should* feel physically better in a few days, so we'll see how that goes.
Speaking of transplants, we found out this morning that neither my sister nor parents are a match for HLA typing (there was only a 1 in 3 chance of my sister being a match anyway), so now it's time to hit the anonymous donor database. I'll send more info on that tomorrow, but the short answer is that potential donors should sign up with the National Marrow Donor Program (http://marrow.org/). They'll send a little kit that you send back with a cheek swab, and then you're entered into the database. You can also visit the Puget Sound Blood Center to do the cheek swab locally.
Some FAQs about joining:
http://www.marrow.org/HELP/Join_the_Donor_Registry/FAQs_about_Joining_the_Registry/index.html
To register online:
http://www.marrow.org/HELP/Join_the_Donor_Registry/Join_Now/join_now.html
To register in person at the Puget Sound Blood Center:
http://www.psbc.org/programs/marrow.htm
http://www.marrow.org/HELP/Join_the_Donor_Registry/FAQs_about_Joining_the_Registry/index.html
To register online:
http://www.marrow.org/HELP/Join_the_Donor_Registry/Join_Now/join_now.html
To register in person at the Puget Sound Blood Center:
http://www.psbc.org/programs/marrow.htm
2 comments:
Glad to hear the "traditional" side-effects of chemo have been kept at bay. A credit to the ongoing research in this area, I'm sure. And probably to your positive spirit, as well. Hang in there stever, we're thinking about you.
Well I guess the good news there is that we all have our chance to be "the one" ... oh yeah you know know we all secretly want it to be us!
Well congrats on getting through round 1 without vomiting! I knew your appetite was no match for what they could throw at you!
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